My story of meeting the mother of and a tween with albinism
is...memorable. There were so many sessions to attend and in the midst
of my overload I wondered into the end of a session that focused on how
to handle Street harassment. Ivy sat at the back of the room, I think we
both kind of just wondered in late.
I don't even remember how we struck up a conversation. I only remember us
talking about the various violent reactions her daughter had to deal
with due to the cruelty of other children.
I
wont cower to tell you how shocked I was..how much it shook me learning about other kids breaking bottles over the head of this little
girl who just wanted to go to school, learn and live....it hurt me.
I
know what it feels like to be grabbed in the street without permission.
It boiled my blood and ached my heart thinking of this girl much
younger than I, who should only have to focused on deciding on what she
wants to grow up to do and nurturing that growth, being cornered and having bottles broken over her head because she doesn't have as much
pigment as her classmates.
It shocked me, this happening in America, not in Africa or China but in one of
the states of a leading first world country. In a place that is known through media for being a place of freedom and acceptance a girl is holding her hands
in the shadow of the day and dreaming about being darker so she can escape harm and simple exist free. She is
breaking into tears because she is questioning her faith as God didn't
answer her prayers about the colour of her skin in the morning when she woke up. I'm not even just talking about the girl in the picture any more, this is a real situation, real accounts but I am saying to you that it is not an isolated account. How do we change that?
Maybe we remember that we are more than skin colour, that we are more than #TeamLightSkin and more than #TeamDarkSkin, Maybe we remember that race is more than melanin, a lack or abundance of it. Perhaps we entertain that worth transcends physical tributes? Maybe if we did that we would stop convincing generation after generation that they should filter their self worth through the lens of superficial characteristics. Perhaps it would allow them to more quickly and readily see the unwavering value of personality, skill and contribution to society. That is my suggestion but that's a whole different story for a whole different day...
I
had already taken a self defence class at the conference so I was able
to share that with Ivy and encourage it for her daughter too. We bonded
over the struggles of having to be guarded and protective over safety
due to looking differently and strangely enough, over roti. Turns out My
girl V is well acquainted with Indian heritage and knew all about roti
so you know my Caribbean self was impressed!
I
treasure V's friendship and can't wait till we meet again! Her daughter, whom we will affectionately call
Peanut-Buttercup, is a beautiful strong girl blossoming into an amazing woman.
Just over the course of the four days we spent at the conference I got
to watch Buttercup go from talking with her head down to leaving her
mother in the dust as she ran off to join her new friends.
I
still remember looking over at V and hearing her say ' I lost my child
for the first time' with a content smile bubbling up from her heart and spreading across her face.
Okay
let me explain that so you don't get the impression that V is
terrible, she is not. Parents with albinism have no fear on the day to
day of loosing their child with albinism. Let's face it, we stick out
like gold bars in a sea of tomatoes, you just can't miss us. To 'lose'
your child with albinism in a place where they are safe and with people
who understand their struggles and will rejoice with them in their
strength. To lose your child amongst people who will praise them simply
for being and not for being different...it is a deeply emotional and
unexpected joy afforded to us by the NOAH Conference.
In a
world were everyone is always desperate to be seen this seems
unimaginable the overwhelming joy of being able to simply...disappear
from sight for a change. Even more so if you are a person of colour.
For us to disappear
is a bit of a luxury. The NOAH conference put that luxury in our hands
and said 'have fun' so we did. When I share this with people who don't
have albinism, who can easily disappear because they look just as the
world expects them to so the world does not notice if they bow their
head I get disbelieving looks. 'Why would you want that?' is what I am
asked.
The truth is, we don't usually. I LOVE sharing life and experiences with people, you would know this if you've ever spoken to me. I wouldn't be writing this blog post if I simply wanted to disappear.
Here is the harsh truth; we all have those moments, when we don't want
to be kind, when we want to throw on a hat and an over sized t-shirt and
simply fade into the masses consumed by our own uninterrupted self
discovery. It might be rare, if you are more on the extroverted side like myself, but these moments do happen, we are all deserving of them but we don't all get to have them.
For many of us
with albinism those moments are like finding a needle in a hay stack while having bad eyesight. A
stroll down the side walk never goes unseen and barely goes without
someone feeling like they have a right to comment on who you are, what
you look like and what you should do with your life. No thank you, I know who I am, I know whose I am and I should not be made to defend that constantly when the rest of the world is not.
Peanut-Buttercup
said this to me and know I will never forget it as long as I live 'I
used to think I was the only one in the world and this weekend I was one
in one thousand!' I had to put on a brave face y'all. I used to think
the same thing you see. On my little Caribbean island at 11 years old I remember stealing
myself against the isolation of being the only one that looked like me
in the world. Accepting that I would never look to my left or right and
see someone who looked like I did...
It
didn't turn out that way for me and because of the NOAH Conference it
didn't turn out that way for Peanut-buttercup either, thank God. The NOAH Conference was our opportunity to be a part of a community of rarity
Peanut-Buttercup is doing pretty good these days by all accounts, she's been out their joining groups, growing up and discovering herself safely and confidently with the aid of her amazing mother who, has taught her the art of a quick witted tongue and a no nonsense sense of self worth. V loves her daughter and continues to teacher to way of the strong willed, driven, capable woman. Those are
the parents that build success from the ground up by teaching capable despite difficulty or difference.
Did the NOAH Conference serve to aid this, I would so say certainly.
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My trip to the NOAH Conference 2016 was made possible by sponsorship from: The Writers Association of Grenada, Kallalou Designs (shout out to my boss earrings), The Office of the Prime Minister and various good Samaritans who insist upon not being named because they are kind beyond measure <3